Let's start off with a few positives.
Having my suprapubic catheter is amazing.
No more smelly, uncomfortable pads. No more embarrassing accidents. No more planning everything by where the next accessible toilet is. No more packing pads
and spare knickers before anything else in my handbag before we go anywhere. No more getting up several times a night. No more wetting the bed.
Now my negatives.
I was sent home from the hospital with a disposable leg bag and nothing else. That
night I had to keep getting up to empty it.The next day my delivery came from Charter (the nurse had ordered for me with no discussion). It contained night bags, day bags and a stand for the night bag. That night I went to bed and set it all up. The day bag
attached to the night bag and that hung on the stand at the side of the bed. I was 50 years old with an eleven-year-old son at home and there was a tube of urine coming out of the bed and into a bag for everyone to see. I was not happy and neither was my husband
and son. Also if I turned over in the night it disconnected and leaked so I was back to wetting the bed. Another problem was during the day the day bag, which was held by a strap going around my thigh, kept slipping down for all to see. The problem was, I
am a big lady and the strap kept moving down my leg. I tried putting it on tighter but it was so uncomfortable I had to loosen it. This might not be a problem to you slimmer people.
First I tried an aqua sleeve, which is like a
tubular bandage, to hold my day bag up. It was better than the strap but still uncomfortable. I wore leggings all the time and put the bag to my stomach which felt a lot better, but even big knickers wouldn't do the same job and I couldn't wear leggings forever.
Eventually, after lots of searching, I found the "Belly Bag". It was ideal, so I ordered some (fortunately Charter did them too). It was great! It is held by a strap around the waist and holds 1000cc so I didn't even need a night bag! All my problems solved.....but
new ones introduced. The belly bag is not a disposable bag so it needs washing out, but it had no instructions. Eventually, after a lot of searching, I found two suggestions. the first vinegar and the second bleach. Since I only had malt vinegar in and didn't
want to smell like a chip shop, I tried bleach. Whichever you use you have to water it down ten to one. You also need a syringe. Make sure both tubes are clean and leave it in the bag for a couple of minutes. Rinse and dry and its ready for use again. When
its no good throw it away.
When I saw the specialist I was told to wear them for around 7 days and dispose of them, so no more washing them out. Hooray!!!!
If you are reading my blog you will know about my problems with my catheter coming out.
I still believe I have an infection so I am going to have to try a different approach. Watch this space to so if it works!
New idea! I now use a syringe to clear the catheter on a morning and reconnect it again. It seems to be doing the job and it is
not blocking and coming out as much.
Even with all the problems I am having I still think I did the right thing and still love it when it is working right.
That's all for now but keep watching as I put more ideas and tips on here. If you want
to ask me anything please just send me a message.